Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Friday 2 March 2012

Then it hits...


When I was 16/17 years old, the colds around me eventually penetrated my defences and I cought one. It quickly deteriorated even with some basic treatment and antibiotics I still kept getting worse and was becoming delirious.

As we didn't have a clue what was going on, I continued like that for 4 days. Getting worse and worse. Eventually we had to go to the hospital. The pain in my lungs was terrible, but what was to come I would never have thought would hit me!

Extract;
...My father woke up at about eight he took one look at my ill and increasingly frail body and decided that I should seek medical aid at the hospital. He had seen me quickly deteriorate over the past four days and became significantly concerned at my continuing distress...

Find out exactly what happened in my book DMD Life art & me; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.


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