What it's all about...

My book DMD LIFE ART & ME is an autobiography, a textbook, a year by year guide and a small encyclopaedia of DMD knowledge! One of the first UK autobiographies from a person living with Duchenne Muscular Dystrophy. It's not a vain puffing up of myself but an open, candid, honest and insightful personal story of a life lived through adversity.

50% of my proceeds go to Action Duchenne, a DMD charity looking to help out! It has been out over a year and available on Amazon, Action Duchenne's webshop, as an ebook and in a local shop!

Extract; ...I’d like to thank all my family for being such good sports all through my writing adventure. Thanks to my Mother for all the care ..... she gave me along the way. I’d like to give special thanks to my dear friend ... whose support and early encouragement helped me write this book. Thank you for reading every chapter as I wrote them. Thanks to my current doctors for helping me stay alive so far. All thanks to my God for giving me the gifts and knowledge to write this book and the ability to enjoy the process. Lastly thanks go to you the reader...

To buy my book please find all the links here; http://duchennemen.net16.net/buymybook.html




Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.