How cool are siblings!

I often talk of how helpful my parents are but I don't want to overlook my sisters, my eldest sister would make sure my youngest sister and I stopped arguing as kids and would drop everything for me. My youngest sister made me fleece covers and kneepads for my wheelchair and a few other things.

Extract; ... I was holding a small piece of wood which was light and straight, whilst my arm rested three inches in the air on a soft foam pad that [my youngest sister] had made...

DMD affects the whole family both directly and indirectly, being honest I never used to think that or understand it. Through writing this book and interacting with the DMD community, I know this is a whole family condition. That means thousands more are affected than the approximate 20,000 diagnosed worldwide every year.

Read how my whole family are affected in my book DMD LIFE ART & ME, buy the ebook and paperback here; http://duchennemen.net16.net/buymybook.html

(Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!

Offer closes on April the 1st 2012.)


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.