The great lift debacle...

For many years I had a lift (elevator) that was reliable and dependable. Sadly in 2006 it started to all go wrong!

Extract;
...I know only too well life tends to throw a spanner in the works. That spanner in this
case was my old grey lift. It had been my loyal servant for a shade over a decade, but time and wear had started to take its toll...

I ended up stuck in it being told that 'we'll have to cut the wires!' Thankfully my dad came home and rescued me! It was decided I'd needed a new one.

That's when the real trouble started, my old lift was dismantled leaving a gaping hole in my room and me stranded upstairs waiting for the replacement. It was never built! The company left us high and dry at the 11th hour. We had to find another lift company.

Read how I coped stranded in my upstairs bedroom for a few weeks! In my book DMD LIFE ART & ME, available in ebook and paperback versions here; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.