New life...

In a totally non DMD related entry in my book I talk about seeing my nephew for the first time. He was the only baby I've properly held in my arms and it was a really special moment. It just goes to show that there's always more important things than Duchenne.

My book isn't all DMD 100% of the time, there's a lot more to life than just the illnesses we have and this reminds me of that;
Extract;
...As I was quietly talking to him, saying how special and brilliant he was, he opened his small eyes for just a few seconds. At that precise moment my mother took a photo of me looking straight into his eyes. I could have held him there all night transfixed on this tiny bundle gently sleeping in my arms....

Read more about real life issues every one faces in my book DMD LIFE ART & ME; Available in ebook and paperback versions here; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.