The joy of work...

For me doing something or working or volunteering is a great way to keep happy. It takes away boredom, it stops me dwelling on bad things and really increases my positivity. Having a plan and an aim to work toward aids in all these things.

I volunteered first when I originally ventured full time onto the internet back in 2005-2006. It was an online pool league, I've worked for two and really enjoyed it for the most part. The camaraderie between fellow volunteers was cool and I miss some of that. I found it difficult eventually and over time changed my aims and work to keep me busy. Also my faith got me motivated to improve in this area greatly. I was far happier than just playing computer games endlessly like I had done.

Extract;
....I started putting in long hours hosting many tournaments and getting new members to join up. It was amazing being able to do this despite having a disease that paralyses me[but I can feel]....

To read through my many working adventures and new directions then buy my ebook and my paperback versions here; http://duchennemen.net16.net/buymybook.html



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.