Unmistakably Mom!

Lots of mothers with sons or daughters living with DMD are fantastic! They are the best carers, friends, comforters and most importantly moms.

My mom has always been there for me, making sure my path through life has been relatively smooth and backing me up. I couldn't ask for a better mother!

Exactly;
...I always remember her as being strong and loving throughout my childhood and now into my adulthood. She has always backed me up when things piled on me...

So thanks mom for all you do! Read more on my fantastic family in my book DMD LIFE ART & ME, buy the ebook or paperback version here; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.