The normal things...

Regardless of DMD, there are always the normal family things going on. It's a great way to put all things Duchenne out of your mind. It's not like you sit there saying 'woe is me' all day because that gets you nowhere. Paying bills, eating, drinking, working and life get in the way of that! All the normal things.

One such occasion was when my eldest sister was pregnant with her first child, I remember checking websites for her looking up the particular sizes of the embryo at any given week. I loved thinking about what to buy the little one and looked forward to being 'Uncle Ian'!

Extract;
... It’s good having [my youngest sister] around as we are of a similar age, so there’s always plenty to talk about. We were both excited for [my eldest sister] and would often talk about baby presents and how much we’d spoil the little one...

Read more about my family and the normal things that I've done in my book DMD LIFE ART & ME. Available in ebook and paperback versions here; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.