Change

There are some changes that are very much welcome. For instance, starting a new art project, starting a new job, being old enough to understand and learning new skills.

With DMD change is like a double edged sword. I've experienced periods of positive change but I have also experienced a lot of negative changes. Losing the ability to walk, the ability to move my arms and one of my worst bug bears new equipment entering into my life.

I understood that this equipment was much needed but it's the kind of change I did not like. It's a constant reminder of loss and the relentless need to keep getting updated equipment really annoyed me especially in my younger years.

Extract;
...Just when I had gotten used to a piece of equipment I was measured up for a new item. There’s no choice with DMD you either had to change or be in pain from an undersized piece of equipment...

Find out more about my struggles and triumphs surrounding change in my book DMD LIFE ART & ME!

Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my free e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is free, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 25 days left!!!!!




Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.