Vacation memories.
I don't mention every vacation I've been on in my book or it would be about 1000 pages long! I do mention a few of the places I've been too. Around the same time as we got drenched in Lancaster, my family and I went to Lake Ambleside in the Lake District in NorthWest England.
After some huge persuading I reluctantly rolled my wheelchair on to a boat. I really don't like being on anything that floats at the best of times! However I really enjoyed it once we were underway looking at the beautiful scenery that reminded me of home.
Extract;
...I took my chair (reluctantly) on a canal barge and on a boat cruising up Lake Ambleside in Lancashire...
Read about more my vacation adventures in my book DMD LIFE ART & ME! (For you e-book readers turn to page 32)
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only 23 days left!!!!!
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
No comments:
Post a Comment